Hybrid event

Right to live independently and be included

Registration Open

norden.org

Date & time

12.02.2025 12:00 (GMT+2)

Where

Online and on-site at the Finnish Institute for Health and Welfare THL, Mannerheimintie 166, Helsinki, Finland

Language

English

The theme of the event is the Article 19 of the UN Convention of the Rights of Persons with Disabilities CRPD; living independently and being included in the community.

The aim of the event is to promote the implementation of the CRPD, especially in the selected areas where there are particular common challenges. Experiences and examples will be presented from the Nordic and Baltic countries, and from the European level. Topics to be discussed include services and other preconditions that enable independent living – such as de-institutionalization by developing services for the local community and supported decision-making.

Programme

Opening of the event

12.00 Opening words, Mika Salminen, Director general, Finnish Institute for Health and Welfare
12.10 Sirpa Rautio, Director of the European Union Agency for Fundamental Rights

Independent living

12.30 Guidance on independent living and inclusion in the community of persons with disabilities in the context of EU funding, Olga Martínez de Briones, European Commission

12.50–14.20 Practices from Nordic and Baltic countries

  • Promoting independent living in residential housing in Sweden: A new National Centre of Knowledge on Autism and Intellectual Disability, Karin Flyckt, Socialstyrelsen, Sweden
  • Promoting independent living in Iceland, Anna Klara Georgsdóttir, Ministry of Social Affairs and Labour of Iceland
  • Experience with Piloting a Component-Based Service Model in Estonia, Elen Preimann, Ministry of Social Affairs of Estonia
  • Independent living in Norway, Anna Bjørshol, Bufdir
  • End of institutions? Reflections on the current state of deinstitutionalization in Finland, Hannu Vesala, Finnish Association on Intellectual and Developmental Disabilities

Questions and comments

14.20–14.40 Break

Supported Decision-making

14.40 Supported decision-making and EDF human rights report on legal capacity, Marine Uldry, Human Rights Policy Coordinator, European Disability Forum

15.00 Practices from Nordic and Baltic countries

  • Latvia’s experience on developing the supported decision making service, legislation and system, Dace Kampenusa, Ministry of Welfare of the Republic of Latvia
  • Lithuania’s experience on developing supported decision-making, Rasa Genienė, Ministry of Social Security and Labour of the Republic of Lithuania
  • Supported decision making in Act on Disability Services in Finland, Rut Nordlund-Spiby, Finnish Institute for Health and Welfare
  • Principles for supporting decision-making based on Finnish experiences, Pia Mölsä, Inclusion Finland (KVTL)
  • Draft law on supported decision-making in Norway, Martine Eliasson & Aage Gjesdal, Uloba
  • Supported Independent Decision-Making for Adults with Moderate Intellectual Developmental Disabilities, Mie Engen, Aalborg University & Thomas Waring Stubbe, University College of Northern Denmark ​​​​​​​

Conclusions 
16.15–16.30 Sanna Ahola and Mikko Joronen, Finnish Human Rights Centre

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Registration

Registration Open

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Vida Gintautaitė

Vida Gintautaitė

Adviser for Social and Health issues

Lithuanian, English, Russian

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